
Let’s hear from our Facebook Group members
Testimonials from the CPL Facebook group.
We are lucky to have a group in excess of 18000 members from across the world, including many vets and other industry professionals, who are all dedicated to helping CPL horses. Let’s hear some of their experiences.
“An amazingly kind and invaluable space full of great information that has helped me no end…. Thank you so so much”
Kate Finsberg (2025)
“Before I joined this group i only knew about feather mites, none of the vets here in Denmark knew anything about my work horse leg problem. I read a lot in here and my horse is absolutely much better. People in this group are very helpful… I try to inform others when i see posts in Danish horsegroups and tell about this group.”
Heidi Jørgensen (2025)

“I bought my first cob last year and had never experienced CPL, this group has been amazing,I’ve learnt so much regarding diet and how to manage this condition. Very supportive group, forever grateful. I think we have it under control at present.”
Mandy Hall (2025)
“My testimonial is a little different as I don’t have a horse suffering with CPL, however I am an equine vet (15 years and counting!) and since discovering this group, I direct all of my clients with horses with any/all aspects of this disease to this group. It is invaluable for providing clear, evidence based, practical advice for the long term management of CPL/CPPD. I also recommend it to all of our vets to further their knowledge and enable them to provide best advice to our clients. I hope this isn’t offensive but very often I find that Facebook groups Can be a little “dangerous” in terms of scaremongering and spreading false information, however this group is the complete opposite. It has also transformed my approach to treating feather mites, in the majority of cases with astonishingly good results! Bravo, and please keep up the good work. I hope you take comfort and pride in knowing that your work is highly respected and is being shared by professionals.”
Holly Thomas, UK Veterinarian (2025)
“Since joining this group my horses legs have 100% improved, I was losing the battle and had resigned myself to the fact that it was just how her legs were gona be forever but after reading every possible article in this group Iv made changes and cannot believe the difference (sorry no pics) . I would say sometimes what works for one horse may not work for other regarding creams etc there are many on the market and you just have to find the one that works for your own horse, the correct feed is essential and with as much movement as I can offer her we now don’t feel deflated and exhausted at losing that battle thanks to all the experts that have contributed in offering everybody bloody good advice for FREE and without Hannah’s endless knowledge, dedication and strength to ignore the ignorant ones, this group wouldn’t exist so thank you so very much we can never repay you for what you have given us all”
Theresa Palmer, (2025)

“Without this group I was absolutely clueless! All the help and advice / support has helped me & my mare immensely. She is 100% feeling better.”
Paula Wain (2025)
“The information on this website has been essential for me and my cob who has CPL. I could write an essay on how his legs, health and gait have improved hugely once I followed the information on treatment and feeding. Thank you.”
Ena Ní Bhaoill (2025)

“Amazing supportive group with so much knowledge and information. Has given me so much help to make sure my pony lives his best life and has improved so much since I’ve put the knowledge from this page into practice. It can be a lot to get your head around but Hannah and the team are great to get all the right advice.”
Anna Ramsay (2025)

Left hind 31.8.24 – Left hind 28.11.24
“LG was diagnosed in summer 2024. I was devastated, luckily my vet was knowledgeable about CPL and pointed me in the direction of Hannah’s facebook page. We went from thinking it was a death sentence to being able to manage his symptoms. We changed his whole routine, his diet, everything! Including supplements. I was tearing my hair out because he wouldn’t eat marigold and cleavers but very matter of fact advice sorted that. This page also dispelled the myths about ‘cobs legs’. With treatment, LG went from a to b. Still have occasional flare ups but we act immediately and keep it to a minimum. Thank you Hannah and Co.”
Wendi Murphy (2025)

“Don’t have any photos but since joining cpl group I’ve managed to improve my boys legs 100% and he’s so much happier so thankyou xx “
Savannah Milan (2025)

“So much improved with help and advice from this group!”
Helen Greary (2025)
Before image (left) 2023, after (R) 2024
“Three years on, we have managed to improve and contain (for now) this is down to the support, knowledge and information from this group. Always willing to help and advise. Thank you!!”
Alison Swain (2025)
“Amazing group, amazing experts! Hannah has the patience of a saint and the clipper queen wow! What I have learnt is invaluable. Thrilled to report the cob we bought almost 2 years ago very heavily feathered, vet check didn’t pick up CPL and so the very first time I’ve had to very quickly had to learn how to manage it, very upsetting and quite distressing at first, yet now a complete transformation with her condition being managed and only because of all the great support and advice given here. Thank you to all the angels that got us to where we are today
x “
Suzanne Danks (2025)

“This page has been a god send. Helped me out these last couple of days I’ve been following the guides, exercising regular and swapped his feed and his legs have gone down slightly [and they] are getting a little bit better each day.”
Page Harvey Mila, UK

“I learned that marigold and cleaver was good for my brabants CPL. And later the importance of taking breaks from it every 5 weeks. It has been a huge help to understand what is going on in the lymph system, and how to avoid it to get worse. That bandages created to increase blood flow in the legs, if not good for CPL horses. And the blood flow should only be Increased by exercise. In this picture, there is 1 year between the first and the last picture.”
Katrine Holm, Belgium

“This page has been a tremendous help with me and Bella. Bella was confirmed CPL back in June/July 2020 by my vet after Hannah had seen pictures.Bella before and after pictures to follow.Management changes were just the marigold and clever as she’s already on turn out 24/7 (track system) Replacement treats in her toys to thunderbrooks. Thank you Hannah for your continued support in every aspect
“
Debra Leighfield, UK
“When I got my first draft in 2018 I did the typical PPE like a good horse buyer does. The vet was on out of state one and not my own vet. The horse was full feather. Sold as a unpapered Drum, his feathers were super thick. He passed the ppe with flying colors. He arrived home 2 weeks and my vet examined him and noticed the sores. That began my journey to this page and CPL. My vet diagnosed him as lymphadema and said he would die of it. You can imagine what I was like. He was so sweet that we were hooked so no turning back. I happened upon this site and then the work began. I started on M&C and changed to Purina Ultium feed, timothy pellets and orchard round bale on slow feed net. He was in need of about 300# on his. He had lots of sores. At first we had to drug him to clip. Now he just stands. I clipped him for the spring and for the first time with a two sore and they were teeny. This page has been extremely helpful with creams and support from everyone. Most vets have no clue and know little about treatments so this team is really needed by so many.”
Meredith Kevins Scaccia, USA

“The Fenway Foundation for Friesian Horses receives regular inquires about CPL, particularly regarding diagnosing CPL and managing it. We also have several permanent resident Friesians at the Foundation with CPL. This group has afforded us the opportunity to verify our standing course of treatment and management for CPL horses and has additionally provided excellent, unparalleled educational resources for us to share with the Friesian community. Unforunately, the veterinary community is not well versed in CPL and the Chronic Progressive Lymphodema (CPL) (Equine) Facebook Group has become a refuge for owners of CPL horses seeking knowledge backed by proven scientific research. We are so grateful for this group and the help it is providing countless horses battling CPL!”
Angie DePuydt, US, Fenway Foundation.
“I am a fairly new member, have shires and live in Ohio. Heard about your site from a comment on another Facebook comment. It all makes so much sense now! I have really appreciated all of the knowledge and everything that I’ve learned so far!”
Mary Jones, OH
“Hi I’m in Norfolk UK. I was directed here from the mallanders site as I mentioned that my ponies legs were so big I couldn’t get a sausage boot to fit. I’d never heard of CPL before. This makes absolute sense now. I’ve used one spot for his mites and am attempting to remove hair. Can clip anywhere above the shoulder.”
Sarah Vicary, UK
“I was recommended to you by a friend who has a Clydesdale mare. You were extremely helpful in correctly diagnosing my friend’s mare.”
Lynn Killeen, NJ
“Hi thanks for letting me join. This is Captain. 20yr old Irish cob and it’s looks like he might have cpl! Learnt loads already. This a great group. Got my cleavers and marigold ordered. Can’t wait for it to arrive and get it into his system.”
Claire Wilkinson, UK
“Mary and I had been battling scabby legs for almost 18 years before finding this group. Not only do we now understand that she’s got CPL and the things we can do to improve that condition. I’m also soooo much more knowledgeable about CPL, Mallenders & Sallenders, and mites – and how they all affect one another. With this knowledge we’ve been able to have the best year ever for treating and keeping her condition under control.”
Paige Hobart, UK
“My boy has just been diagnosed this week so finding all the posts and comments really useful… I was so upset when he was diagnosed but I feel a lot better now after joining this group and reading up on it”
Jenna Harland, UK
“This group with the help of Hannah Johnsen and many others has been a lifesaver for my boy! We purchased a 5 year old Gypsy Vanner back in September. During the PPE the vet found what to be scratches (of course this was misdiagnosed and was in fact a bad case of mallanders and I mentioned the folds to him and he said “it’s common for the draft breeds”)… of course I took the vets opinion because I thought they knew best.. November came along and our treatment never made anything better. A friend of mine referred me to this group and has changed EVERYTHING! We got his diets taken care of, got him on M&C, pulled shoes, etc. He was more of a rescue from the start as he was underweight, bad coat, broken mane and tail, and had been through 5 owners (we are the 6th) in his 5 years of life. We knew we needed to give him the best home for LIFE! He know he will forever be part of our family and is so much happier now! We’ve got him out of pain, put on nearly 300 lbs of weight, and he gets free range of 14 acres of beautiful pasture. I don’t know what I would do without this group and the amazing ladies behind it!! I am eternally grateful ![]()
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we now have our mallanders under control and the folds have decreased in size so dramatically that we just have one crease nearing the pastern and no sores!”
Britta Wallner, US

“The knowledge in this group has been so valuable with dealing with my daughters mare bally. Marigolds and clevers has literally saved us .She is now due to have her feathers off again . We find for Bally the best way to keep her legs clear from sores in the winter is to let her feather grow but as soon as the warmer weather comes out it’s feathers off and bath/cream time .The tips in this group have touch wood helped her be mite free for the last two years and in medium/light work.”
Rachael Newick, UK

“This is my girls legs. In 3 days I’ve seen a improvement. Started marigold & cleavers, using cetraben cream & washing every few days. Hopefully she’ll keep improving.”
Lindsay Nugent, UK

“My mare has suffered with CPL for 7 years with all the signs of this disease, without us knowing what was causing all her problems. Amber had a flare up in December 2020, not knowing where to turn I found this page by chance and it has truly changed my mare’s quality of life. Without this page my mare would still be suffering. I can’t thank Hannah and all the admin enough for all their hard work and dedication to this page and disease.”
Lauren Symes, UK

“I was plunged into panic buying a pony not knowing it had CPL, filled with regret. Joined the group and have felt like I have had my hand held since then. Avoiding the vet and bills because the advice is so effective. Thank you so much.”
Michelle Turnbull, UK

“I bought my Clydesdale mare in spring 2019 and I noticed that she would literally throw herself to the ground and chew her legs. I finally decided to clip her feathers one day and it looked like someone had put out cigarettes on her legs. She had so many open sores, I had never seen anything like it before. I started washing and treating them everyday until the sores finally healed. I just assumed it was from living in muddy conditions and didn’t think anything of it. This past fall I posted a pic of my horse in a Clydesdale owner fb group and someone mentioned she might have CPL and to join this group. My vet at the time said no, but Hannah and others confirmed that it was CPL. After that I dove into this group and all of the resources [offered]. The marigold and cleavers have helped so much, as well as consistent exercise. I’ve also spread the word to all of the other draft owners I know because it’s so important for us to be informed and have a strong support system like this one. I’m so grateful to be a member of this group!”
Ashley Z, NY